Viewing: Pulmonary Fibrosis - View all posts

Meeting The New Pulmonologist ~ 10/8/25 

On 10/8/25, Matt underwent a new High-Resolution CT Scan, from under his chin to his waist. This was for his new Pulmonologist, Dr. Jha (pronounced jaw). We really like him. He is very blunt and honest and we appreciate that. Unfortunately, Matt's lungs are getting worse. Dr. Jha said that Matt is too young to be dependent on oxygen 24/7/365. He wants to do better for him. So, he is referring Matt to IU. This is a great thing. Matt will get more extensive testing and the doctors there should be able to do more to help him. That is also where he would have to go to be put on the lung transplant list and Dr. Jha wants him on that list as soon as possible. It all sounds very scary, but it will give Matt a much better quality of life. Dr. Jha says all of this is going to be a lot to handle and it will be absolutely exhausting. We are praying that we will hear from IU within the next month or so.

Matt was put on Ozempic for his type 2 diabetes. As of his last appointment, he has already lost 80 pounds. Dr. Jha says Matt will need to lose at least 20 more pounds to improve his chances of getting new lungs. He should be able to lose at least that much.

Please keep Matt in your thoughts and prayers. Prayers of thanks are always appreciated, too. We count all of this another blessing. We will continue to keep you all updated. Thank you all for your support.

~Matt & Erin

https://www.caringbridge.org/site/d748b785-b463-11f0-9946-1147d21a3fd1/post/a6b7e968-a964-4931-8792-5c601dc56580

In Case You Didn't Know ~ 10/8/25 

Hello Family & Friends!

Matt and I believe this is the best way to keep all of you updated on Matt's health. This is much easier than calling everyone and explaining everything, over and over.

For those of you who may not know, or are too "afraid" to ask, Matt is on oxygen because his left lung is more than halfway full of scar tissue. Who would have ever guessed that pigeon dander could cause so much damage and scarring?

We have included pictures of his CT scans, one year apart (click on it to see both). It's also a reminder of why he's on oxygen 24/7/365. He is more than likely going to need a lung transplant. We have been together for more than 30 years. Like everything else we have faced in our lives, we will face it hand in hand and side by side.

We will continue to update you as we learn new results and plans. We thank everyone of you for your kind words, positive thoughts and continued prayers.

Matt & Erin

https://www.caringbridge.org/site/d748b785-b463-11f0-9946-1147d21a3fd1/post/d7e2c14a-b463-11f0-8e5f-916287ba3049